Sunday, February 5, 2012

Hyperlexia

I have a hard time understanding verbal speech.  I can't pay attention to conversations with the television on -- my friends hate me for it.  Even if I'm really concentrating, I can only understand 90-95% of what is said when I am watching television or a film.  In fact, most of the time I don't bother going to the cinema, but wait until a movie is on DVD to watch it with the subtitles.

I noticed it when I was a teen.  I assumed that I had hearing loss due to playing in rock bands and attending loud clubs.  I started religiously wearing earplugs, hoping (as a musician) to guard what remained of my hearing.  When I stopped studying music and went to graduate school, I had to sit at the very front of every class, or I couldn't "hear" what the professor was saying.

Concerned that I might need hearing aids, I had my hearing tested several times.  Each time, my hearing was completely normal.  I was concerned that I was just gaming the hearing test.  When I was little I also had my hearing tested.  I learned to anticipate "tones" by watching the face of the person giving the test -- looking for "tells," microexpressions or other evidence that I should be raising my hand.  (Sociopaths must be difficult to diagnose for certain things because of this.)  At my last hearing test, several years ago, I insisted that I face away from the examiner who was already in another, darkened room separated by glass.  I passed with absolutely normal hearing.  Still I doubted the results, wondering if my acute sense of timing was causing me to hear tones in what I knew would otherwise be an uncomfortably long silence.

The puzzle was that I did not have a hard time hearing in general.  I took several acoustics and sound recording classes at university and had an exceptional "ear" across the sound spectrum.  It was just speech that I had a hard time deciphering.  Not language.  My reading comprehension has always been off the charts.  Verbal language.

My friend's niece learned to read when she was just one year old from (shockingly) those "your baby can read" DVDs.  Someone opined that the niece might be hyperlexic, characterized by an extraordinary facility with written language, frequently paired with a difficulty in understanding verbal speech.  Hyperlexia is associated with the autism spectrum (as with other language issues), with some experts believing that all hyperlexics are autistic.  I don't think I'm hyperlexic.  I show no real signs.  I do think, however, that my inability to decode verbal speech has less to do with my ears and more to do with my brain.  Brain wiring?  Attentional problems?  Whatever it is, it seems to not affect music cognition, but that's another thing shared with the autism spectrum.

Friday, February 3, 2012

Overdiagnosing Asperger's

Two recent NY Times pieces discuss the overdiagnosis of Asperger's.

This op ed is written by someone who was mistakenly diagnosed with Asperger's as a teenager by his psychologist mother who (surprise!) specialized in Asperger's.  He eventually outgrew his social awkwardness, but wonders if he would have if he had been diagnosed younger, or would he have withdrawn even more in a sort of self-fulfilling prophecy:


I wonder: If I had been born five years later and given the diagnosis at the more impressionable age of 12, what would have happened? I might never have tried to write about social interaction, having been told that I was hard-wired to find social interaction baffling.

The authors of the next edition of the diagnostic manual, the D.S.M.-5, are considering a narrower definition of the autism spectrum. This may reverse the drastic increase in Asperger diagnoses that has taken place over the last 10 to 15 years. Many prominent psychologists have reacted to this news with dismay. They protest that children and teenagers on the mild side of the autism spectrum will be denied the services they need if they’re unable to meet the new, more exclusive criteria.

But my experience can’t be unique. Under the rules in place today, any nerd, any withdrawn, bookish kid, can have Asperger syndrome.

The definition should be narrowed. I don’t want a kid with mild autism to go untreated. But I don’t want a school psychologist to give a clumsy, lonely teenager a description of his mind that isn’t true.


Under the headline: "Asperger's History of Over Diagnosis,"we get a shout out as the only people who might not eventually be labeled as being a bit of an Aspie:


For better or worse, though, Asperger syndrome has become a part of our cultural landscape. Comments about a person’s having “a touch of Asperger’s” seem to be part of everyday conversations. Even an episode of “South Park” last year was devoted to Asperger syndrome. We can only hope that better physiological markers distinguishing between the autism-spectrum disorders and pure social disabilities can stem this tide of ever more pathologizing.

But, as Martha Denckla, a pediatric neurologist at Johns Hopkins University, has lamented, the only Americans in the future who will perhaps not be labeled as having a touch of Asperger syndrome will be politicians and lobbyists. Members of the political establishment may have other kinds of psychopathology; but, unlike the rest of us, they at least cannot be thought of as Aspies.


Of course we can all be glad that we will never be diagnosed as having Asperger's (which doesn't mean that I won't sometimes throw out that I am also a little bit Aspie to get sympathy and leeway). I guess we can also be happy that people seem so reluctant to diagnosis anyone who isn't a murderer a sociopath (and categorically exclude children).  In my mind, though, I don't see anything wrong with labeling people a little bit Aspie or a little bit sociopathic, unless it's an issue of prescribing medication or other radically different treatment.  But if there are no meds and there is no treatment, then what is wrong with slapping a label on someone as long as it helps others understand them (and helps them understand themselves) better?

Thursday, February 2, 2012

Subspecies

A posting at Rifters.com recently featured this blog saying things like: "As everyone agrees, the word for getting rid of a whole subspecies is not 'cure'. I’m not quite sure what the right word might be, but it’s probably somewhere between extermination and genocide."

But specifically about this site:

I do not know the name of the person behind “Sociopath World”; doubtless that’s by design.  He or she (actually, screw it; I’m gonna go with he) refers to himself merely as “The Sociopath” on his contact page, as “M.E.” on Twitter, and as me@sociopathworld.com when he hands out his address (which makes me doubt that the “M.E.” Twitter handle is an actual set of initials).  No matter.  This is either a subtle and very labor-intensive hoax, or it’s your one-stop-shopping center for the interested empath (they call us “Empaths”, apparently, which I find both more precise and less condescending than the “neurotypical” label the Autistic Spectrum types seem to prefer).  The most popular posts end up on the FAQ list: Do Sociopaths Love?  Are Sociopaths Self-Aware? Am I a Sociopath? Can Sociopaths be “Good”? There are helpful how-to pointers:  How to break up with a sociopath, for example (the illustration to the right was taken from that particular entry; at least we know that sociopaths have a sense of humor). 

There are pop-culture observations: whether the new Twenty-first-century Sherlock really is a sociopath in the world of fiction, whether Lady Gaga is in real life, the potential infiltration of sociopaths into Occupy Wall Street drum circles. There’s a forum, rife with trolls and assholes and deleted posts; but there’s also legitimate debate there.  And surprisingly, it also seems to function as a kind of support group for people in emotional distress. 

You can even, I shit you not, order a Sociopath World t-shirt. 

So. ME is out there, fighting the good fight. He’s getting noticed (at least, his blog gets shitloads more comments than mine, not that that’s a high bar to clear in the wide webby world). He’s showing up on the occasional psych blogroll. So now, I’m going to sit back and see if the neurodiversity community is willing to pick up the torch.  If he is trying to kickstart the Vampire Rights League, though, I think he’s fighting an uphill battle.

Reading the comment section, there is a remarkable absence of people arguing that Aspies and Auties should not be lumped in with filthy, no-good sociopaths.  Instead we get things like: "When I first ran into sociopathworld.com I thought that’s what it was, evil trying to represent itself as less than totally harmful or at least as something not to be so rightly feared. I’m less sure, now, and we should probably all spend some time reading there."
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