Showing posts with label neurodiversity. Show all posts
Showing posts with label neurodiversity. Show all posts

Tuesday, January 31, 2017

Legitimate form of life

I tweeted this article about how Oliver Sacks conceives as difference not as a disability, but as a different set of abilities, but I wanted to share some more thoughts on it.

Maria Popova writes:

A voracious lifelong reader, Dr. Sacks had grown enchanted by the H.G. Wells short story “The Country of the Blind,” set in an isolated society where blindness prevailed for three centuries and where a lost Western traveller finds himself the aberrant one, afflicted with sight. Drawing on the Wells story, his own childhood experience of visual migraines that temporarily blunted his color perception, and his neurological work with a painter who had suddenly become colorblind, Dr. Sacks bridged two of his great literary and intellectual heroes — Wells and Darwin — and wondered whether there might exist, not in fiction but in geography, a real isolated culture where total colorblindness — or achromatopsia — had become a basic condition among the population.

Because such mutations are most easily contained in cultures isolated by sea, he reasoned that if such a society existed, it would have to be on an island. After tracking down the appropriate colleague to ask, he was surprised and thrilled to learn that one such island did indeed exist — Pingelap in the Caroline archipelago of Micronesia, where total colorblindness had been coloring the genetic pool for two centuries.
***
Like all genetic deviations from the mean, colorblindness on Pingelap had emerged due to a formidable brush with randomness. In 1775, a typhoon decimated 90% of the people living on the island. Most of the remaining survivors eventually succumbed to a slow death of starvation, so that of the one thousand islanders only twenty remained. Several centuries earlier, the original settlers had brought to Pingelap the recessive gene for colorblindness, but because the population had been large enough, the odds of two carriers marrying and the gene manifesting in their children had been fairly low. Now, with a tiny but fertile group left with no recourse but inbreeding to repopulate the island, the recessive gene suddenly flourished into growing domination and total colorblindness was soon a common condition.



Oliver Sacks writes:

Colorblindness had existed on both Fuur and Pingelap for a century or more, and though both islands had been the subject of extensive genetic studies, there had been no human (so to speak, Wellsian) explorations of them, of what it might be like to be an achromatope in an achromatopic community — to be not only totally colorblind oneself, but to have, perhaps, colorblind parents and grandparents, neighbors and teachers, to be part of a culture where the entire concept of color might be missing, but where, instead, other forms of perception, of attention, might be amplified in compensation. I had a vision, only half fantastic, of an entire achromatopic culture with its own singular tastes, arts, cooking, and clothing — a culture where the sensorium, the imagination, took quite different forms from our own, and where “color” was so totally devoid of referents or meaning that there were no color names, no color metaphors, no language to express it; but (perhaps) a heightened language for the subtlest variations of texture and tone, all that the rest of us dismiss as “grey.”

Sacks brings a colleague, Knut Nordby, who happens to also be colorblind, and experiences the island very differently than Sacks:

For us, as color-normals, it was at first just a confusion of greens, whereas to Knut it was a polyphony of brightnesses, tonalities, shapes, and textures, easily identified and distinguished from each other.

The world wasn't just tailored made for the colorblind, the colorblind people also seemed to have a unique advantage over their counterparts:

The achromatopic children seemed to have developed very acute auditory and factual memories… [They] were oddly knowledgeable too about the colors of people’s clothing, and various objects around them — and often seemed to know what colors “went” with what… We could already observe in these achromatopic children in Mand how a sort of theoretical knowledge and know-how, a compensatory hypertrophy of curiosity and memory, were rapidly developing in reaction to their perceptual problems. They were learning to compensate cognitively for what they could not directly perceive or comprehend.

The best part of the video is at 2:55 where he tells the story of them asking how the colorblind could even tell when a banana was ripe, since they couldn't distinguish between green and yellow. They brought a green banana, and they sort of contemptuously thought -- this illustrates our point, they can't tell this banana is green. But the banana turned out to be ripe. They explained -- you're narrow minded, you would have said this banana wasn't ripe because you would only be focused on color, but they were focused on everything else about the banana -- texture, smell, etc. Similarly, a lot of people who rely on empathy have a hard time understanding how those without it could make the same sorts of judgments or choices for which the empaths rely on it so heavily. Not only can we make the same judgments and choices, we sometimes can get there more accurately without the empathy, because the emotions are not clouding our moral judgment.

The video continues, we do stigmatize people because people have characteristics that put them in conflict with others, but once the population has a large percentage of that type of person, they just seem normal. I think of the debate I got in with someone about which is more dangerous -- maleness, or sociopathy. In my mind there's an easy argument to make for maleness. If you took a female empath and made her a sociopath, she would be much less statistically likely to be a violent criminal than if you made her into a man. That's just the statistical difference between males and females in terms of propensity towards violence. But of course no one seriously advocates for the elimination of men from the human race. Since they are so prevalent, we think of their violent tendencies as being rather normal.

Sacks puts it this way:

There is a sort of critical level, so that if a tenth or a quarter of the population have some condition, it has to be accepted as a legitimate form of life and won’t be marginalized and, sometimes, won’t even be noticed.

Friday, January 15, 2016

Compassion (victimhood) vs. agency (accountability)

I've noticed in law school that smart people with one viewpoint or ideology who surround themselves with people of an opposing viewpoint or ideology tend to be 3-5 years ahead of the general thought trend amongst the class of people who consider themselves educated (by that, I mainly mean people who read the NY Times, just because I am not sure by how else to refer to them).  Philosopher Martha Nussbaum is one of these types of people. As much as I don't often agree with some of her ideas (animal rights?), hers is a rare mind that understands not just the reasons that she believes make her right, but all of the reasons that others think she is wrong. Which is sort of reassuring in reading her work. In her book Upheavals of Thought, as excerpted by Brain Pickings, she discusses the interesting interplay and intersection between agency and victimhood. True to what I just described, she anticipates some of the backlash against the cult of victimhood (published in 2001! 14 years before college students begin protesting microaggressions, amazingly prescient), but argues that the backlash goes too far -- that although identifying as a victim could be a worryingly disempowering tactic for the would-be victim, we also can't deny that people are often hurt by the world in ways that they do not deserve:

Compassion requires the judgment that there are serious bad things that happen to others through no fault of their own. In its classic tragic form, it imagines that a person possessed of basic human dignity has been injured by life on a grand scale. So it adopts a thoroughly anti-Stoic picture of the world, according to which human beings are both dignified and needy, and in which dignity and neediness interact in complex ways… The basic worth of a human being remains, even when the world has done its worst. But this does not mean that the human being has not been profoundly damaged, both outwardly and inwardly.

The society that incorporates the perspective of tragic compassion into its basic design thus begins with a general insight: people are dignified agents, but they are also, frequently, victims. Agency and victimhood are not incompatible: indeed, only the capacity for agency makes victimhood tragic. In American society today, by contrast, we often hear that we have a stark and binary choice, between regarding people as agents and regarding them as victims. We encounter this contrast when social welfare programs are debated: it is said that to give people various forms of social support is to treat them as victims of life’s ills, rather than to respect them as agents, capable of working to better their own lot.
***
We find the same contrast in recent feminist debates, where we are told that respecting women as agents is incompatible with a strong concern to protect them from rape, sexual harassment, and other forms of unequal treatment. To protect women is to presume that they can’t fight on their own against this ill treatment; this, in turn, is to treat them like mere victims and to undermine their dignity.

[…]

We are offered the same contrast, again, in debates about criminal sentencing, where we are urged to think that any sympathy shown to a criminal defendant on account of a deprived social background or other misfortune such as child sexual abuse is, once again, a denial of the defendant’s human dignity. Justice Thomas, for example, went so far as to say, in a 1994 speech, that when black people and poor people are shown sympathy for their background when they commit crimes, they are being treated like children, “or even worse, treated like animals without a soul.”
***
If, then, we hear political actors saying such things about women, and poor people, and racial minorities, we should first of all ask why they are being singled out: what is there about the situation of being poor, or female, or black that means that help is condescending, and compassion insulting?

She discusses why she believes people are reluctant to acknowledge true victims, essentially an application of the just world fallacy (the belief that the world must be ultimately basically fair):

The victim shows us something about our own lives: we see that we too are vulnerable to misfortune, that we are not any different from the people whose fate we are watching, and we therefore have reason to fear a similar reversal.

One thing that has been interesting about being more public about having a personality disorder that is largely loathed by a large segment of the population is the lack of compassion. The truth is that the sociopath is its own type of victim. No one chooses to have a personality disorder. A sociopath is a victim of genes and environment that triggered those genes at such an early age that the sociopath does not even remember that time period. The sociopath likely was preverbal. The sociopath for sure was an infant, toddler, or small child. The sociopath lacked almost any control over what was done to him or her and certainly had no understanding about the consequences of those experiences, nor had any adequate coping skills or ability to have chosen to develop otherwise.

So the agency/compassion distinction is big with sociopaths, and really all personality disorders and a lot of mental health problems that are stigmatized. On the one hand, society really must demand a certain sort of responsibility for actions and conformity to basic rules of behavior (i.e. agency), even from those who have different brain wiring. Ok, but why do we have to hate people with different brain wiring? The agency/compassion distinction does not mean that they're mutually exclusive, right? Can't we both have compassion for people and hold them responsible for their actions? Or I guess a slightly different question is, can't we hold people responsible for their actions without necessarily blaming them for their actions? 

Friday, December 4, 2015

No psychos in psychology?

A sociopathic identifying reader whom I had previously had a conversation with recently sent me this update:

I was recently released from my graduate program in psychology, more than halfway through my program. I assure you that I was not released due to low grades, I don't struggle in that area. I was released due to flat affect. They felt that I didn't make a good fit. After being told of my release of the program, my professor grew frustrated because I didn't react much to the news. I didn't feel like becoming self-destructive or venting. I had already gotten on good terms with a professor from another school who will transfer me to his program. I made friends with this professor for this reason. Is that manipulative or just smart thinking? When my professor was telling me about my release from the program he looked concern for my well being. All I could do was stare at him and think what it would be like to bite his lips off his face in front of the other professors. This reminded me of an excerpt in your book. Just thought I would share. 

I don't know why, but I was a little shocked and pretty disheartened to read this. I guess in some ways it makes sense, particularly if you assume that all sociopaths will cause harm -- it's not a matter if if, it's when and who and how. But is that assumption really warranted? (By the way, I just recently got an email from a secondary school student doing research into what makes sociopaths want to kill. Good question, except it's almost as nonsensical as asking something like what makes black people want to kill? Or even more starkly, what makes men want to kill? See here, here, and here regarding the very lopsided statistics regarding gender/race and propensity to commit violent crime.) There are people with autism that study and contribute to the greater understanding of autism as well as helping others with autism. There are people who are schizophrenics who do the same. Is there really no room in psychology for psychopaths?

When I asked him if I could let people know what happened to him here, he indicated that he was concerned that some would assume that psychology must be filled with evil psychopaths, so gave this explanation as to why he was interested:

As far back as I can remember, there has always been an appeal to power and saving lives.  I have specifically chosen to work with the traumatized.  Sitting across the room from someone with PTSD, is pure fantasy for me.  It's like a fairy tale. A wounded bird has been put before me, and I have the power to step on it or fix it.  Of course I fix it, because it's something that friends and family were most likely not able to do.  In return, I set it free to take its place back in the environment. Because of me, I have ensured survival for its offspring.  I have given the tools and psychoeducation so that one can cope and participate in life.  It will be passed on through nurture and eventually become part of its nature.

Thursday, September 24, 2015

Sociopathic diversity

I am always interested to hear different perspectives from people who identify as being sociopathic. I think it's easy to hear from people who are at different stages in their lives or who have had different experiences and co-morbidities or different intensities of the sociopathic traits. For instance, before I ever experienced anxiety (about 5 years ago), I would have never thought myself capable of it and if anyone had told me that they thought they were sociopathic but experienced anxiety, I would have thought that couldn't be true. (It's a mixed blessing to now not be so sure of myself about things like that or anything else really).

I thought this description from a reader illustrated some of this diversity:

Its such a relief to know that I am not alone. So much of what you have said on this blog rings unbelievably true. Ive never been a very honest person. Honesty has never been priority because i know that if people really knew my motivations, intentions and feelings that i would be socially outcasted. My ability to change personalities to fit into and mimic whatever social scene I am in is the only way i can fill the strange lack of feeling that ive experienced ever since i was a child. 

 I am exhausted from being villainized and shamed for my sexuality and inconsistency and impulsive actions. Maybe i am just projecting when i say this, but I cant accept that I am worse or not as worthy of life just because I lie and have flexible ethicals. Other people cause just as much, if not more, harm to their fellow man with honesty and set value systems. Everyone is selfish and careless at some points in their lives, or at least they should be. I think having flexible character and morals is so much more valuable then having identities and morals that you would go to war over. 

I have fit into many places and situations with wild success by mixing beautiful concoctions of lies and the truth. These partial narratives have created my outward identity. But in these narratives i do give glimpses of truth and with this i have been working on piecing together my true personal identity. What i have found about myself, is that I am complicated and have a rich story to tell. 
I will never identify as a sociopath because it feels like a betrayal. I have tried to "define" or "identify" myself as many things to cover up for some of my unconventional behaviors. Ive tried being a sex/love addict to explain my cheating and jumping from partner to partner, or bipolar to explain my sometimes wild actions. Ive claimed that people close to me have died just to explain being unnecessarily emotional, so no one will know where my anger or agitation is really coming from.  The truth is though that i don't have an excuse that i can give people, other then coming out as a sociopath. But If i claimed the title "sociopath" i risk making the term inauthentic to myself. 

I Had a good childhood. no real traumas. I am successful and privileged and damn lucky in my exploits. I have no reason to think that this world is lonely, random and inescapably disastrous. But thats how i know the world to be. And whats interesting is that that doesn't bother me. we as individuals are too small for it to matter what we go through because for all we know the universe as we know it is just a micro combustion; the spark of a flint striking steal in a bigger picture we can not see or conceive of.  

That was sort of a long winded rant but I needed to share it for some reason with someone who might understand because you shared with all of us. you really are an inspiring character and excellent example of a slice of society no one wants to look at. 

I really identified with this: "I have no reason to think that this world is lonely, random and inescapably disastrous. But thats how i know the world to be." I think it describes well the way the world looks like when you don't have any of the usual emotional/love/hope/etc. wool over your eyes like others do (but obviously still other types of wool -- sociopaths are not immune to their own delusions about themselves and the world.).

Sunday, September 6, 2015

Neurofeedback

I have been putting off writing about this because I wish that I knew more and could tell you more, but I also feel like better something than nothing. This past summer I did a round of 15 sessions of neurofeedback along with a friend who really wanted to try it and wanted sort of a buddy in the process, but also because I have always struggled to fall asleep and stay asleep and this was recommended to me as a potential help. I don't really want to try to describe the process completely or even my experience with it (nor give the impression that I endorse it) but I do want to relate a little of my experience with it.

I first started with a QEEG mapping of my brain, essentially (and forgive my ignorance) where they put a cap on your head are tracking your brain waives with all of these nodes placed in different areas of the scalp. This UCLA professor kind of describes its use in neurofeedback here. One thing that I found incredibly credible about the results was that knowing nothing about me (I never told him about my diagnoses of anything), my practitioner told me, in this very cautious way, "I don't want to alarm you or anything, and this is definitely something that we can see in the "normal" population but it is much more common in the autism spectrum, but your empathy and emotional processing regions have abnormally low functioning. Do you ever feel like you are disconnected from your emotions or other people?"

So even though my primary focus was on sleep, brain efficiency, and perhaps increased creativity (if any of these were possible and I was just making a wishlist), my practitioner became pretty fixated on working on the emotional processing. Sometimes he wouldn't tell me outright that was what he was doing for that particular session, I could just tell from the types of questions he would ask me. Sometimes he told me but said that he thought it was necessary to get that up and running before we targeted other things on my wishlist.

Things I appreciated about the experience:

  1. It was a little validating to hear that my brain actually is demonstrably mapped out to be crapped out (at least according to these metrics) when it comes to empathy. 
  2. Making the little green boat move with my brain waves while keeping the red and yellow boats still in the little electronic regatta made me realize: (1) my thought patterns are a lot more fixed and beyond my control than I realize and (2) because I consciously process so much information as it comes into my brain, I am less open minded. By the latter I mean that my very mechanism of trying to consciously process as much information as I can rather than letting the subconscious deal with it requires me to quickly categorize the data as being interesting or important or not, and always according to my pre-existing criteria. I've always thought that this made me function higher cognitively because less is getting past me, but I realized that it also has the weird but predictable effect of making me search for familiar patterns and thus be closed minded to truly new things, concepts, or types of information. 
  3. Certain sessions (again forgive my ignorance) where he wasn't tracking my brain waves but feeding my brain certain waves could be an absolute trip. Once I felt for all the world like I was on an opiate.
  4. I slept really soundly and deeply after almost every session in what felt like deep, restorative sleep. 
  5. I did sometimes feel waves of affection or other very strong emotional moments of truth, either during the sessions or in the days between the sessions, that suggested that there is still (for me) a capacity for less muted emotions. 

I didn't continue after 15 sessions because my talk therapist suggested that the problem with the neurofeedback technology and techniques are that the brain changes are there, but that they don't last. Again, I did not do any research to verify that claim, so forgive my ignorance.

Even if the effects did not last, there were certain realizations I made during the process that have lasted. I understand better how my brain takes in raw information and that my most efficient brain processing is not to try to earmark or categorize everything as it is coming in (as I naturally default too now), but rather to try to passively let the information come to me in whatever form it chooses to take -- as if there is a direct tunnel of information from the source straight to my brain and I just need to keep that tunnel clear, not force anything. I realized that I do have strong attachments to my loved ones, even if that feeling of attachment or love does not always seem very accessible to me. My practitioner was also a dabbler in dream interpretations, and I learned that whether or not dreams actually have meaning, there was sometimes useful information to glean from the analysis of my dreams. Maybe I will discuss one particularly clear example in a future post. 

Wednesday, April 9, 2014

Quote: Education

“Black and Third World people are expected to educate white people as to our humanity. Women are expected to educate men. Lesbians and gay men are expected to educate the heterosexual world. The oppressors maintain their position and evade their responsibility for their own actions. There is a constant drain of energy which might be better used in redefining ourselves and devising realistic scenarios for altering the present and constructing the future.”

― Audre Lorde, Sister Outsider: Essays and Speeches

Monday, March 31, 2014

Psycho vs. psychotic (part 1)

I had an interesting discussion with a reader on the relationship between the psychopathic and psychotic. I was expecting to see almost no relationship, but was surprised to see at least a few parallels, particularly in that we both experience the world in a way so different than neurotypicals and consequently are treated differently for it (unless we're pretty expert at hiding it):

I greatly enjoyed and admired your book. So much that I’d be reckless enough to call it important, given how it counters the standard model of the sociopath and gives a voice to others like you. 

Thanks to your book, I’ve concluded that I am not a sociopath. The question has long been there, and maybe - were I to go into detail about my life - my conclusion could challenged. 

Some years ago I was given the diagnosis which saved my life: ‘Bipolar Affective Disorder with Cyclothymic Tendencies” and a prescription for lithium carbonate. After a whole life of depression, violent outbursts, alcohol abuse, self-harm and one potent suicide attempt; I finally had something approaching an explanation. 

I’m grateful to be high-functioning (social workers have expressed surprise at this), and to be carving niches in life and work. I’m more focussed and hugely confident (with an ego my younger self would’ve been affronted by); though increasingly analytical, cold and emotionally detached. I work in retail and relish being able to alter my environment and personality, in order to sway my superiors (or indeed by-pass them altogether) as well as manipulating the buying decisions of customers. In my somewhat kaleidoscopic wetware I love the idea of “bending their will to my own.”  

In my head I maintain an almost comic book sense of personal mythology and continuity. My life and experiences cast in the light of my “emerging powers.” The fear and doubt and servility that characterised me is long dead, and now my concerns centre wholly upon increasing my own sense of achievement, in demonstrating (to myself I must stress) how much I can do, how much I can handle and how well I continue to evolve. 

I exist in a near perpetual state of hypomania (occasionally peaking into irrational ranting/noises inside my head) entwined with a calm, centred “mixed state” where cutting out an eye or slicing open my arms will quell some internal conflict/pain or simply because...reasons. [Un]logic I call it. 

It seems to me that some of what I describe could be considered sociopathic in nature. The difference between sociopathy and sociopathic traits is intriguing to me, because I now wonder if my continued evolution is in part down to adopting (consciously or not) such characteristics. Having to step back, take longer to assess what’s happening, increase the emotional distance. Forcing myself into calculated risks and being willing to follow my gut when boundaries become too much. 

I appreciate how unconcerned you seem with justifying or seeking sympathy for your sociopathy. How it is not a disorder needing a cure.  Perhaps another reader would raise an eyebrow about now, but I can only stutter from where I stand. 

He concluded with two questions: "How thin do you consider the line between psychopathic and psychotic can be? What can the “coping strategies” of one offer to the other and vice versa?" To which I replied:

I have myself often wondered about the beneficial aspects of sociopathic behaviors, particularly evolutionarily or as defense tactics against a hostile world. A lot of people that visit my site are from eastern europe. Is it because they've had to become gradually less emotional in dealing with harsh circumstances? I actually don't know that much about psychotics. So you would consider yourself a psychotic? You would probably be a better person to ask then, what is the difference?

Monday, March 10, 2014

Neurodiversity = all inclusive?

Another supporter from the autism community arguing that neurodiversity should mean exactly what it says:

As a Diagnosed Autistic, and as an individual who displays antisocial traits (Irritability, lack of guilt/remorse, the ability to display a "Shallow Affect".), I find people with AS to be despicably hypocritical as it regards individuals with ASPD. They demand to be understood by "Neurotypicals", and they demand that society not demonize them and make them out to be monsters, and damn it, they demand that people respect that they're "wired differently", but they're willing to throw sociopaths, narcissists, low functioning autistics and other supposedly "Neurodiverse" people under the bus, lest God forbid, some imbecile attribute the asinine stigma they attach to other people to them. Utter cowardice. Here's a radical concept: If you're going to embrace human rights, guys, embrace them for all individuals. Otherwise they cease to be rights and become privileges for the "In Group".

Jordan C. Garrett 

What do you say, autism spectrum? Should we go into this together?!

Friday, December 6, 2013

Oxytocin as treatment for autism?

I didn't realize that some parents were already treating their autistic children with oxytocin. The NY Times reports that this practice has been recently supported by the results of a recent study:

[T]he small study, published Monday in The Proceedings of the National Academy of Sciences, found that the hormone, given as an inhalant, generated increased activity in parts of the brain involved in social connection. This suggests not only that oxytocin can stimulate social brain areas, but also that in children with autism these brain regions are not irrevocably damaged but are plastic enough to be influenced.
***
“What this shows is that the brains of people with autism aren’t incapable of responding in a more typical social way.”

In the new study, conducted by the Yale Child Study Center, 17 children, ages 8 to 16, all with mild autism, got a spray of oxytocin or a placebo (researchers did not know which, and in another session each child received the other substance). The children were placed in a functional magnetic resonance imaging machine, an f.M.R.I., and given a well-established test of social-emotional perception: matching emotions to photographs of people’s eyes. They took a similar test involving objects, choosing if photos of fragments of vehicles corresponded to cars, trucks, and so on.

During the “eyes” test, brain areas involved in social functions like empathy and reward — less active in children with autism — showed more activity after taking oxytocin than after placebo. Also, during the “vehicles” tests, oxytocin decreased activity in those brain areas more than the placebo, a result that especially excited some experts.

“If you can decrease their attention to a shape or object so you can get them to pay attention to a social stimulus, that’s a big thing,” said Deborah A. Fein, a psychology professor at the University of Connecticut.

With oxytocin, the children did not do better on the social-emotional test, unlike in some other studies. But experts said that was not surprising, given the difficulty of answering challenging questions while staying still in an f.M.R.I.

“What I would look for is more evidence of looking in the eyes of parents, more attention to what parents are saying, less tendency to lecture parents on their National Geographic collection,” Dr. Fein said.

But before ya'll go running out to buy over the counter oxytocin, beware these warnings:

A study of healthy men found that oxytocin made them more biased against outsiders. And when people with borderline personality disorder took oxytocin, they became more distrustful, possibly because they were already socially hypersensitive.

I wonder what the neurodiversity thinks about the idea of curing autism by making them ore interested in people and less interested in cars, trucks, and National Geographic. Are people objectively more interesting than vehicles and well-respected science/culture magazines? Is that what we mean by autism "disorder"? And if that's true, does that mean that we should all be medicating ourselves, since some people think that we're all somewhere on the autism spectrum? And where is the sweet spot on the spectrum that we should all be trying to achieve?

Speaking of messing with people's brains to achieve random subjective results, this article on recent research suggesting that brains stimulated in a particular way appreciate art more (at least representational art).

Wednesday, June 19, 2013

Parent to a sociopath (part 2)

While I was watching We Need to Talk About Kevin, I thought several times about Andrew Solomon's book Far From the Tree, in which he writes about outlier children (i.e. children who are quite different from their parents, e.g. deafness, dwarfism, disability, genius, criminality, etc.). He discusses the difficulties that such children present to their parents, who have hoped to see their own unfulfilled promise attained vicariously through the lives of their children, and the great disappointment that can accompany the realization that their child is not who they imagined he would be (via Brain Pickings):

In the subconscious fantasies that make conception look so alluring, it is often ourselves that we would like to see live forever, not someone with a personality of his own. Having anticipated the onward march of our selfish genes, many of us are unprepared for children who present unfamiliar needs. Parenthood abruptly catapults us into a permanent relationship with a stranger, and the more alien the stranger, the stronger the whiff of negativity. We depend on the guarantee in our children’s faces that we will not die. Children whose defining quality annihilates that fantasy of immortality are a particular insult; we must love them for themselves, and not for the best of ourselves in them, and that is a great deal harder to do. Loving our own children is an exercise for the imagination. … [But] our children are not us: they carry throwback genes and recessive traits and are subject right from the start to environmental stimuli beyond our control. 

The most directly applicable We Need to Talk About Kevin quote:

Having exceptional children exaggerates parental tendencies; those who would be bad parents become awful parents, but those who would be good parents often become extraordinary.

Solomon also looks at the unique struggles of children who are born to parents that do not share the same defining traits. He first identifies the distinction between vertical identities, those we inherit from our parents like ethnicity or religion, and horizontal identities:

Often, however, someone has an inherent or acquired trait that is foreign to his or her parents and must therefore acquire identity from a peer group. This is a horizontal identity. Such horizontal identities may reflect recessive genes, random mutations, prenatal influences, or values and preferences that a child does not share with his progenitors. Being gay is a horizontal identity; most gay kids are born to straight parents, and while their sexuality is not determined by their peers, they learn gay identity by observing and participating in a subculture outside the family. Physical disability tends to be horizontal, as does genius. Psychopathy, too, is often horizontal; most criminals are not raised by mobsters and must invent their own treachery. So are conditions such as autism and intellectual disability.

(A quick note, I think the reference to psychopaths is hilariously demonizing, especially given Solomon's great care to withhold normative judgments of "bad" or "good" for the other outlier characteristics he discusses. To illustrate, imagine if he had used a similar negatively slanted statement for gay horizontal identity "most kids are born to straight parents, so must invent their own perversion.")

Solomon, who actually is gay with straight parents (but apparently feels that he did not invent his own perversion, unlike sociopaths), came up with his theory on vertical and horizontal identity when he noticed that he shared common identity issues with deaf children of hearing parents:

I had been startled to note my common ground with the Deaf, and now I was identifying with a dwarf; I wondered who else was out there waiting to join our gladsome throng. I thought that if gayness, an identity, could grow out of homosexuality, an illness, and Deafness, an identity, could grow out of deafness, an illness, and if dwarfism as an identity could emerge from an apparent disability, then there must be many other categories in this awkward interstitial territory. It was a radicalizing insight. Having always imagined myself in a fairly slim minority, I suddenly saw that I was in a vast company. Difference unites us. While each of these experiences can isolate those who are affected, together they compose an aggregate of millions whose struggles connect them profoundly. The exceptional is ubiquitous; to be entirely typical is the rare and lonely state.

I have noticed (and mention in the book) that there has been a lot of push back on labeling people, particularly the pathologizing of more than half the population. How could it possibly be that fewer people in the population are normal than abnormal?! But which seems more plausible -- that we are all cookie cutter neurologically the same? Or that we are all on a bell curve of myriad different human traits, our particular blend making us both completely unique (we actually are neurologically all special snowflakes, it turns out) and yet share identifiable traits in common across the entire swath of humanity. And that's a good thing. Charles Darwin remarked on the great variety of the human species:

As the great botanist Bichat long ago said, if everyone were cast in the same mould, there would be no such thing as beauty. If all our women were to become as beautiful as the Venus de’ Medici, we should for a time be charmed; but we should soon wish for variety; and as soon as we had obtained variety, we should wish to see certain characteristics in our women a little exaggerated beyond the then existing common standard.

Despite the many advantages of diversity, many families (and society) tend to treat horizontal identities as disorders that we would hope to eventually eliminate from the species:

In modern America, it is sometimes hard to be Asian or Jewish or female, yet no one suggests that Asians, Jews, or women would be foolish not to become white Christian men if they could. Many vertical identities make people uncomfortable, and yet we do not attempt to homogenize them. The disadvantages of being gay are arguably no greater than those of such vertical identities, but most parents have long sought to turn their gay children straight. … Labeling a child’s mind as diseased — whether with autism, intellectual disabilities, or transgenderism — may reflect the discomfort that mind gives parents more than any discomfort it causes their child.

(Is Solomon correct here? I think there are actually a lot of people who think that white Christian men are superior to other races/genders/religions, gay people are an abomination, autistic and disabled people are a drain to scarce social resources (same for sociopaths), etc. And perhaps their beliefs are not wrong, or at least it would depend on what measuring stick and set of values you use to judge.)

But I don't think it's the labels that are harmful, necessarily. Indeed, labels can be a boon to all outsiders forming their own horizontal identities. Rather, the problem seems to be the xenophobic system of enforcing social norms that encourages expressions of repulsion and shaming at what is too foreign to be relatable, whether it is feelings of disgust regarding gay people (especially gay people who do not feel the need to hide or tone down their "gayness"), the practices of other cultures (especially things that our own western culture has outgrown, like arranged marriages and modest clothing for women), or the backwards beliefs of religious "cults" (whereas our own religious beliefs are seen as perfectly plausible and normal).

Finally, Solomon describes what eventually happens to the mother in We Need to Talk About Kevin (and a hopeful statement for all parents of sociopathic children):

To look deep into your child’s eyes and see in him both yourself and something utterly strange, and then to develop a zealous attachment to every aspect of him, is to achieve parenthood’s self-regarding, yet unselfish, abandon. It is astonishing how often such mutuality has been realized — how frequently parents who had supposed that they couldn’t care for an exceptional child discover that they can. The parental predisposition to love prevails in the most harrowing of circumstances. There is more imagination in the world than one might think.

Tuesday, May 28, 2013

Defining my disorder

This was an interesting NY Times op-ed ("Defining My Dyslexia") of someone's firsthand account of dealing with dyslexia and coming to see it as having both helped and hurt him in his life. I thought there were some interesting parallels:

Last month, at the Emily Hall Tremaine Foundation Conference on Dyslexia and Talent, I watched several neurobiologists present evidence that the dyslexic brain, which processes information in a unique way, may impart particular strengths. Studies using cognitive testing and functional M.R.I.’s have demonstrated exceptional three-dimensional and spatial reasoning among dyslexic individuals, which may account for the many successful dyslexic engineers. Similar studies have shown increased creativity and big-picture thinking (or “gist-detection”) in dyslexics, which correlates with the surprising number of dyslexic entrepreneurs, novelists and filmmakers.

The conference’s organizers made a strong case that the successes of the attending dyslexic luminaries — who ranged from a Pulitzer-winning poet to a MacArthur grant-winning paleontologist to an entrepreneur who pays a dozen times my student loans in taxes every year — had been achieved “not despite, but because of dyslexia.”

It was an exciting idea. However, I worried that the argument might be taken too far. Some of the attendees opposed the idea that dyslexia is a diagnosis at all, arguing that to label it as such is to pathologize a normal variation of human intellect. One presenter asked the audience to repeat “Dyslexia is not a disability.”

On what role people with a disorder should have in helping to define that diagnosis:

At the heart of the conference was the assumption that a group of advocates could alter the definition of dyslexia and what it means to be dyslexic. That’s a bigger idea than it might seem. Ask yourself, “What role should those affected by a diagnosis have in defining that diagnosis?” Recently I posed this question to several doctors and therapists. With minor qualifications, each answered “none.” I wasn’t surprised. Traditionally, a diagnosis is something devised by distant experts and imposed on the patient. But I believe we must change our understanding of what role we should play in defining our own diagnoses.

Before I went to medical school, I thought a diagnosis was synonymous with a fact; criteria were met, or not. Sometimes this is so. Diabetes, for example, can be determined with a few laboratory tests. But other diagnoses, particularly those involving the mind, are more nebulous. Symptoms are contradictory, test results equivocal. Moreover, the definition of almost any diagnosis changes as science and society evolve.

Diagnostics might have more in common with law than science. Legislatures of disease exist in expert panels, practice guidelines and consensus papers. Some laws are unimpeachable, while others may be inaccurate or prejudiced. The same is true in medicine; consider the antiquated diagnosis of hysteria in women. Those affected by unjust diagnoses — like those affected by unjust laws — should protest and help redefine them.

I like that part, particularly "Diagnostics might have more in common with law than science. Some laws are unimpeachable, while others. . . inaccurate or prejudiced". He mentions as an example the role that people with autism have had in helping to change the common understanding of what that disorder means, particularly outside of clinical settings in which most disorders are studied. Once people started coming forward in droves as having autism, it helped spawn the neurodiversity movement and got people to challenge their false assumptions.

Some people might balk at  efforts to redefine disorders (particularly one as nefarious sounding as sociopathy) as not being all bad or even having positive effects on both the life of people with the disorder and the world around them. I don't see why, though. Wouldn't you want to think that people (even sociopaths) are not all bad? That they have special skills that could benefit society? That they might also have rewarding lives? I guess I just don't ever see the long term wisdom in further marginalizing already fringe  groups.

Monday, May 20, 2013

Appendix (part 7)

I wanted to include this quote in the book chapter about Mormonism, regarding the Mormon church's doctrine re different types of people (including neurodiversity), but it was too late to add to the manuscript. From LDS President Dieter F. Uchtdorf:

But while the Atonement is meant to help us all become more like Christ, it is not meant to make us all the same. Sometimes we confuse differences in personality with sin. We can even make the mistake of thinking that because someone is different from us, it must mean they are not pleasing to God. This line of thinking leads some to believe that the Church wants to create every member from a single mold—that each one should look, feel, think, and behave like every other. This would contradict the genius of God, who created every man different from his brother, every son different from his father. Even identical twins are not identical in their personalities and spiritual identities.

It also contradicts the intent and purpose of the Church of Jesus Christ, which acknowledges and protects the moral agency—with all its far-reaching consequences—of each and every one of God’s children. As disciples of Jesus Christ, we are united in our testimony of the restored gospel and our commitment to keep God’s commandments. But we are diverse in our cultural, social, and political preferences.

The Church thrives when we take advantage of this diversity and encourage each other to develop and use our talents to lift and strengthen our fellow disciples.

Friday, May 10, 2013

DSM-5 = "lack of validity"

Says the Dr. Thomas R. Insel, director of the National Institute of Mental Health. From the NY Times:


While the Diagnostic and Statistical Manual of Mental Disorders, or D.S.M., is the best tool now available for clinicians treating patients and should not be tossed out, he said, it does not reflect the complexity of many disorders, and its way of categorizing mental illnesses should not guide research.

“As long as the research community takes the D.S.M. to be a bible, we’ll never make progress,” Dr. Insel said, adding, “People think that everything has to match D.S.M. criteria, but you know what? Biology never read that book.”

Insel describes the problem of all psychiatric diagnoses:

“Unlike our definitions of ischemic heart disease, lymphoma, or AIDS, the DSM diagnoses are based on a consensus about clusters of clinical symptoms, not any objective laboratory measure. In the rest of medicine, this would be equivalent to creating diagnostic systems based on the nature of chest pain or the quality of fever.”

It's interesting, a lot of people will come on here and baldly assert, "sociopaths don't do this" or "that's not what borderline personality disorder is." And that's fine. I understand the flaws and ambiguities in my own working definitions of psychiatric disorders. And I also understand that despite the fuzziness of the definitions, it's still useful to acknowledge that there seems to be commonalities between certain categories of people that deserve further explanation. But I do believe that people have used the DSM unquestioningly for far too long, taking it to the level of being DSM apologists rather than accepting new information with an open-mind, and I'm glad that there is now more pressure to provide actual science behind the various assertions.

For more on the DSM-5's explicit rejection in one instance of actual scientific proof of a separate psychiatric disorder, see this New Yorker article's discussion of melancholia:

[T]he inclusion of a biological measure [for melancholia] would be very hard to sell to the mood group." Coryell explained that the problem wasn’t the test’s reliability, which he thought was better than anything else in psychiatry. Rather, it was that the D.S.T. would be "the only biological test for any diagnosis being considered." A single disorder that met the scientific demands of the day, in other words, would only make the failure to meet them in the rest of the D.S.M. that much more glaring.
***
This notion—that the apparent mental condition is all that can matter—underlies not only the depression diagnosis but all of the D.S.M.’s categories. It may have been conceived as a stopgap, a way to bide time until the brain’s role in psychological suffering has been elucidated, but in the meantime, expert consensus about appearances has become the cornerstone of the profession, one that psychiatrists are reluctant to yank out, lest the entire edifice collapse.

"What can be asserted without evidence can be dismissed without evidence."






Friday, October 5, 2012

Cognitive diversity: the right to one's mind

This article discusses the ethical implications of treating those on the "diversity" side of neuro-diversity as if they have a sickness to be cured:
Our society has a rather poor track record when it comes to respecting the validity of certain "mind-types." We once tried to “cure” homosexuality with conversion therapy. Today there’s an effort to cure autism and Asperger’s syndrome—a development the autistic rights people have railed against. And in the future we may consider curing criminals of their anti-social or deviant behavior—a potentially thorny issue to be sure.

***

As this example shows, the process of altering a certain mind-type, whether it be homosexuality or autism, can be suppressive and harsh. But does the end justify the means? If we could “cure” autistics in a safe and ethical way and introduce them to the world of neurotypicality, should we do it? Many individuals in the autistic/Asperger’s camp would say no, but there’s clearly a large segment of the population who feel that these conditions are quite debilitating. Not an easy question to answer.

This is an issue of extreme complexity and sensitivity, particularly when considering other implications of neurological modification. Looking to the future, there will be opportunities to alter the minds of pedophiles and other criminals guilty of anti-social and harmful behaviors. Chemical castration may eventually make way to a nootropic or genetic procedure that removes tendencies deemed inappropriate or harmful by the state.

Is this an infringement of a person’s cognitive liberty?
This guy seems to be on the side of neurodiversity except (as always) for sociopaths:
So, if one applies a strict interpretation of cognitive liberty, a case can be made that a sociopath deserves the right to refuse a treatment that would for all intents-and-purposes replace their old self with a new one. On the other hand, a case can also be made that a sociopathic criminal has forgone their right to cognitive liberty (in essence the same argument that allows us to imprison criminals and strip them of their rights) and cannot refuse a treatment which is intended to be rehabilitative.

I am admittedly on the fence with this one. My instinct tells me that we should never alter a person’s mind against their will; my common sense tells me that removing sociopathic tendencies is a good thing and ultimately beneficial to that individual. I’m going to have to ruminate over this one a bit further…
He seems to be suggesting that pedophiles should be left alone, but sociopaths have given up the right to their mind by all being criminals at heart. Does that mean if I get caught shoplifting, I get my brain tweaked? What about if you just sort of "know" that since I am a sociopath I will eventually commit some horrific crime?

The author of this article "currently serves on the Board of Directors for the Institute for Ethics and Emerging Technologies and Humanity." Please feel free to email him your thoughts at: george@sentientdevelopments.com. Maybe you can inform his "ruminations" on the subject of denying us the right to our minds.

Tuesday, July 31, 2012

Anders Breivik, Aspergers and NPD

A reader writes:

Hello. I am a recent reader to Sociopath World. I came across a story fitting into one of your ongoing narratives that I don’t foresee getting much circulation in the English-speaking press: One of the psychiatrists observing Norwegian terrorist Anders Bering Breivik has diagnosed him with Asperger syndrome (and also Tourette’s and possibly narcissistic personality disorder, a combination I had never heard of before and raise an eyebrow at).

Here’s an original report in Norwegian (though Google’s translation is surprisingly readable). The CS Monitor buries the claim a few paragraphs down. Wrong Planet’s thread is maybe 60 percent denials and revisionism. Numerous commenters make the point that the diagnosis isn’t “official,” and this might actually be a fair point. Most professional therapists probably can recognize Asperger syndrome “on sight” in an unstructured interview, but for most clinical purposes, a diagnosis based on quantitative and qualitative testing is required. I know when I got tested, I underwent something like six or seven hour-long sessions, and my parents were also interviewed.

As an Aspie, I applaud your efforts to keep up a conversation about ASD and violence. Mainstream neurodiversity advocates’ ignoring or suppression of research on the topic ultimately does a disservice to those they’re trying to help, especially parents of ASD kids. So long as the very real possibility of autistic violence is suppressed, it can only come as a horrific surprise to parents totally unprepared to address it.

I’m also appreciative of your “big tent” conception of neurodiversity. If there are conversations to be had between ASD people and psycho/sociopaths, I wish we were having them.
Keep up the good blog.

I get emails all the time from people on the autism spectrum telling me that I'm absolutely wrong about any connection between autism and violence or sociopathy.  I mean, everyone is entitled to their opinions, but I think theirs are a little suspect than mine.

Thursday, May 3, 2012

Neurodiversity = asset

A lot has been written about neurodiversity and how unfair it is to treat poorly people who fall out of the mental norms.  Despite the push of the neurodiversity movement, things are still labeled with pejorative terms like "disorder" and "syndrome" and the focus has been on "treatment" and integration as if being neurodiverse is equivalent to being handicapped.  In Wall Street Journal article titled "The Upside of Autism," Jonah Lehrer makes a contrary case:

Because of these obvious shortcomings—humans are supposed to be social animals, after all—most people regard autism as a disease, a straightforward example of an impaired mind. But there's compelling evidence that autism is not merely a list of deficits. Rather, it represents an alternate way of making sense of the world, a cognitive difference that, in many instances, comes with unexpected benefits.

That's the lesson, at least, of a new study from the lab of Nilli Lavie at University College London. A few dozen adults, both with and without autism, were given a difficult perceptual task, in which they had to keep track of letters quickly flashed on a computer screen. At the same time, they also had to watch out for a small gray shape that occasionally appeared on the edge of the monitor.

When only a few letters appeared on the screen, both autistic and normal subjects could handle the task. However, when the number of letters was increased, subjects without autism—so-called neurotypicals—could no longer keep up. They were overwhelmed by the surplus of information.

Those adults with autism didn't have this problem. Even when the task became maddeningly difficult, their performance never flagged.

What explains this result? According to the scientists, autism confers a perceptual edge, allowing people with the disorder to process more information in a short amount of time. While scientists have long assumed that autistics are more vulnerable to distraction—an errant sound or conversation can steal their attention—that's not the case. As Prof. Lavie notes, "Our research suggests autism does not involve a distractibility deficit but rather an information-processing advantage."

These perceptual perks have real-world benefits. The scientists argue, for instance, that the ability to process vast amounts of data helps to explain the prevalence of savant-like talents among autistic subjects. Some savants perform difficult mathematical calculations in their head, others draw exquisitely detailed pictures at a young age. These skills have long remained a mystery, but they appear to be rooted in a distinct cognitive style shared by all autistics. Because they can process details that elude the rest of us, they can perform tasks that seem impossible, at least for the normal mind.
***
The larger lesson is that, according to the latest research, these "deficits" are actually trade-offs. What seems, at first glance, like a straightforward liability turns out to be a complex mixture of blessings and burdens.

Of course you would never see an article in the Wall Street Journal titled "The Upside of Sociopathy" and for that it's a little hard for me to take the neurodiversity movement seriously.  But I like this idea of one sense being gone so your other senses fill the gap.  It reminds me of this classic tale of blindness and talent...  you're welcome!


Thursday, February 2, 2012

Subspecies

A posting at Rifters.com recently featured this blog saying things like: "As everyone agrees, the word for getting rid of a whole subspecies is not 'cure'. I’m not quite sure what the right word might be, but it’s probably somewhere between extermination and genocide."

But specifically about this site:

I do not know the name of the person behind “Sociopath World”; doubtless that’s by design.  He or she (actually, screw it; I’m gonna go with he) refers to himself merely as “The Sociopath” on his contact page, as “M.E.” on Twitter, and as me@sociopathworld.com when he hands out his address (which makes me doubt that the “M.E.” Twitter handle is an actual set of initials).  No matter.  This is either a subtle and very labor-intensive hoax, or it’s your one-stop-shopping center for the interested empath (they call us “Empaths”, apparently, which I find both more precise and less condescending than the “neurotypical” label the Autistic Spectrum types seem to prefer).  The most popular posts end up on the FAQ list: Do Sociopaths Love?  Are Sociopaths Self-Aware? Am I a Sociopath? Can Sociopaths be “Good”? There are helpful how-to pointers:  How to break up with a sociopath, for example (the illustration to the right was taken from that particular entry; at least we know that sociopaths have a sense of humor). 

There are pop-culture observations: whether the new Twenty-first-century Sherlock really is a sociopath in the world of fiction, whether Lady Gaga is in real life, the potential infiltration of sociopaths into Occupy Wall Street drum circles. There’s a forum, rife with trolls and assholes and deleted posts; but there’s also legitimate debate there.  And surprisingly, it also seems to function as a kind of support group for people in emotional distress. 

You can even, I shit you not, order a Sociopath World t-shirt. 

So. ME is out there, fighting the good fight. He’s getting noticed (at least, his blog gets shitloads more comments than mine, not that that’s a high bar to clear in the wide webby world). He’s showing up on the occasional psych blogroll. So now, I’m going to sit back and see if the neurodiversity community is willing to pick up the torch.  If he is trying to kickstart the Vampire Rights League, though, I think he’s fighting an uphill battle.

Reading the comment section, there is a remarkable absence of people arguing that Aspies and Auties should not be lumped in with filthy, no-good sociopaths.  Instead we get things like: "When I first ran into sociopathworld.com I thought that’s what it was, evil trying to represent itself as less than totally harmful or at least as something not to be so rightly feared. I’m less sure, now, and we should probably all spend some time reading there."

Monday, February 9, 2009

Sociopaths categorically get excluded from neuro diversity movement


Under the headline, "Neurodiversity editorial: Do we have to accept sociopaths?":

Yay for neurodiversity. History-making artists, scientists, politicians -- were any neurotypical? Probably not. But then who is? Up with neurodiversity.

Yet, I’m a huge hypocrite: I just can’t get with the whole sociopaths-are-just-another-neuro-diverse-population gig.

On the one hand, it’s true: sociopathy is organic. Just like kidney stones. On the whole, kidney stones are seen an illness; a little free will with diet, but, in general, involuntary. Same with sociopathy. Some contextual free-will, but not much. I know that. Predators are predators, sociopaths are sociopaths, that’s what they do.

Contrast autistic spectrum disorders. I’m totally ok with that neurodiversity. Both autistic spectrum and sociopaths lack “empathy” (although there are profound other differences, which I won’t go into here). Why am do I grade these two organic conditions differently, having neurotolerance for autistic spectrum, and no tolerance whatsoever for sociopaths?

Fear. I’m fearful because wild-type sociopaths roaming free in society are capable of huge swaths of destruction, and I can’t tell who they are. They look so lifelike. It’s context. I understand the ecological niche for rattlesnakes. But NIMBY. If sociopaths were culled from the herd, and put somewhere where they couldn’t do any harm, I’d be much more benevolent. I know this is inconsistent. But is it wrong?

If society tested first graders, and herded off the proto-sociopaths into a special needs class, I’d feel sympathy. “Oh, look,” I might say as older vo-tech school sociopaths get off the bus with guidance counselors at Broad and Wall to work the bond trading desk, “how sweet. ” And I’d probably feel good and righteous, and probably tell other people, “I saw the sociopath school bus today. They were all wearing their “Do Not Approach- I’m A Sociopath” badge, and not one put up a fuss. What a great thing for them.”
The author suggests using the crossed out devil logo above to signify your intolerance for sociopaths. I know I don't even have to say it, but it might as well be:

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